Two appointments

This past week we made our way to Vancouver for Aedan's regular 6-month check in with the diabetes clinic. He is doing really well; his A1C came back at 5.2, which means he continues to be in a non-diabetic range. They weighed him, too...he weighs about 30 lbs now! What happened to my little baby?

The trip itself was not much fun. Travelling with two little ones is not my idea of fun. After a few rather unsuccessful attempts to eat in restaurants, we resorted to "hotel picnics". I really wanted to take Aedan to the aquarium, but it didn't happen. We managed to get him to the park,but that was it.

Vancouver was beautiful, as usual. And it hit -44 C here on the Dempster while we were gone. I am so glad we missed that!

On  our way back through Whitehorse, we saw our midwife for Colm's 6 week check-up. He is also doing really well! He weighs 11 lbs 2 ozs now. Christina was really impressed  with how he's developing: he's smiling, cooing, and very alert.

I don't have any pictures from Vancouver, because I wasn't having any fun!

Appointments

We've just returned from a quick trip out to Vancouver for our regular check-up with Aedan's doctors. The appointment went really well. Aedan's A1C hasn't really changed since our last appointment 6 months ago: he is still in a non-diabetic range, which means we're managing his blood sugar really well. I've noticed myself that he seems to be in a much tighter range lately, so that means the 5 mg of Glyburide spread over 3 doses a day is working great. We picked up a new blood-glucose meter, one that uses a much smaller sample than what we've got now, set an appointment for 6 months from now, and we were free to enjoy the rest of the day in Vancouver.

Vancouver was absolutely beautiful, warm and sunny, with lots of flowers blooming. The air smelled of damp earth, cut grass, and green things unfolding. We had lunch on Granville Island, and then watched Aedan play in the park. I have to say, it wasn't easy to come home knowing we're still a month and a half away from weather like that!

On our way back through Whitehorse, I met with my midwife, Christina. That appointment also went really well. We talked about my low energy and decided I should start taking an iron supplement: I'm using Floradix. I told her about the headaches I've been having, and she said the iron supplement might help with that, as might getting more exercise and fresh air. She gave me the name of a chiropractor in Whitehorse, so I might book an appointment with her for my next visit. She confirmed that I seem to be about 14+ weeks pregnant, judging by where my uterus was sitting, and then we listened for the baby's heartbeat! It was so good to hear that pulse; it makes things seem more real to me.

Not the most thrilling or lyrical update, but an important one nonetheless. Enjoy your Sunday!

All about Aedan

On our way to Ontario, we had a stopover in Vancouver, to check in with our "team" at the B.C. Women and Children's hospital. 

The appointment went really well: Aedan's A1C (a blood test that shows a 90-day average blood/glucose reading) puts him in a non-diabetic range. This means that his blood sugar is very well controlled with the 5 mg dose of Glyburide. If we continue to maintain these levels, his chances of suffering the long-term effects of diabetes are basically the same as a non-diabetic. 

He still has high readings in the mornings, though, often followed by a crash 2 hours after he takes his pill. We decided to try splitting his dosage up into 3 times a day: a 1/2 pill with breakfast, 3/4 mid-afternoon, and 3/4 before bed. Today is day 3 of this new routine: Aedan adapts so easily, but of course it's taking me some getting used to. 

It means if we're going out in the afternoon, I have to have a syringe with the dissolved pill prepared with me, plus a snack to go along with it. The morning and evening doses have been tricky, too, because he still hasn't gotten back onto a normal sleep schedule, after our travels.

I'm grateful, though, every day, that it's only this we have to deal with. In comparison to what other families go through, it seems incredibly easy. We're lucky that his particular form of diabetes is recognized and easily managed.

While we're on the topic of Aedan...he's learning so much every day! It is such a joy to be able to facilitate that learning, and to watch him practice new skills.

I mentioned in this post that he enjoys "putting" things...well, his putting has gotten quite refined just lately! He's begun to stack blocks (rather than just knocking them down), and he enjoys playing with a set of nesting cups. He's also learned to fit objects onto a peg, like these wooden rings. 

In the last 2 days, I've noticed him walking backwards: this he does (slowly and carefully) with a huge grin on his face. He's quite the stair climber, too!

Lastly, his signing just blows me away. He signs for milk and more....he uses more as a general purpose "I want" sign: he'll sign "more" and then point to something he desires. He also signs "dog", by patting his chest. It should be his leg he's patting. I read that it's common for babies to learn this sign by patting a different part of the body at first. He also signs for books. Now we're working on "hot", "eat", "drink", and "outside". 

He's also picked up a hilarious shrug from me, when something or someone disappears.

A parcel with his winter gear has arrived at the post office: we're off to town to pick it up today. I can't wait to watch him play in the snow!

Flying solo

A while back, I wrote about how Aedan's diabetes may be treatable with a pill.

Three weeks ago, we began to gradually transition him from his insulin pump to Glyburide. This week, the fourth week of the transition, he is receiving a full 5 mg dose of the medication, and is actually off the pump for the majority of the day. So amazing! He is still receiving some insulin from the pump in the evenings, because his blood-glucose levels tend to be higher then.

It's hard to believe that almost 3 months to the day that he got so ill because of high blood sugar, three months to the day that we found out about his diabetes, his body is making and releasing its own insulin again.

It's been kind of scary for me, taking him off the insulin pump. We'd gotten used to it so fast. It is such a cool piece of technology, and I can see how it must be life changing for many diabetics. Now, I have to learn to trust his body again, trust that it will know when to release insulin and in what dosage. It won't be me making those decisions for him anymore!

We're still seeing low blood sugar readings, even now that he's off the pump most of the time. One of the side effects of Glyburide is hypoglycemia. It seems to happen within two hours of taking the meds...or if he's been particularly active, like playing in the Jolly Jumper. I'm still struggling with feelings of anger and loss over this. I can't just watch him jump and giggle and fully enjoy the moment...now I'm plagued with questions and doubt. Did I feed him enough before putting him in the jumper? Has he been in there too long? Is his blood sugar getting low?

My hope is that, with time (both for me to adjust to having a diabetic child, and for his body to adjust to the new medicine), this will fade and I can focus more completely on enjoying his baby-hood.